Well, hey! I’m Emme, sometimes known as Sunny. I am new at this whole blogging thing, but I guess now is as good a time as any to start, right? I’m not much of a skilled writer, definitely not an extrovert or even technologically savvy, but I am honest, I have a journey I’d like to share and a desire to educate and advocate for those in situations similar to mine. Though some may see my story as an unfortunate rollercoaster or maybe not as bad as it could be (and trust me, at times it’s been both of those things), it’s my story and it’s dying to get out.
I’ve tossed around the idea of writing somewhere or somehow, but never knew how, where or when to start. But in all honesty, I still don’t know how or where to begin. I’m assuming it will be a process, I’m sure there will be a few posts that I’ll be embarrassed by later before I get the hang of it. I am feeling vulnerable and excited about finally putting words on a page.
I have been dealing with a medical illness, and a whole host of lovely side effects (which I’ll get more into later on), for quite some time now. These illnesses have completely changed the my views and the course of my life, I’ve learned more than I could have imagined about myself, relationships, and life in general. Although my illness certainly affects me day-to-day, I refuse to let it define who I am and what I am capable of.
I’ve met people who have told me “I’ll never be the same” after receiving a diagnosis of their own and starting treatment; it’s entirely true, you will never be the same. People seem to view that as a terrible thing, but for me, I’ve grown so much through this process and I wouldn’t change it. I’ve chosen to take my illness in stride and with humor, because honestly it’s a hell of a lot easier than when I was fighting, angry and sad.
The thing with rare or complicated illnesses, is that you learn more from those fighting than from doctors. At times, I’ve gotten better information from blogs than I have from my healthcare team. It brings truth to the saying I hear all to often in regards to treatment – “You have to be your own doctor”.
Thanks for tagging along on this crazy adventure, let’s see where it goes!